Amid her fight with stiff person syndrome, Celine Dion experiences a terrifying seizure in a new documentary
In her brand-new documentary, “I Am: Celine Dion,” Celine Dion features a very personal moment where she endures a horrific seizure that lasts for many minutes.
The Grammy-winning singer is being evaluated by her physician at the start of the scene because she has been having spasms as a result of stiff person syndrome, a rare and degenerative neurological condition.
Sports medicine therapist Terrill Lobo says, “Part of the disease is that as soon as you go into a contraction, sometimes… the signal to release it, doesn’t understand, so it ends up just staying in a contracted position.”
Lobo warns that Dion, 56, may “lead to a crisis” if she continues to spasm after he has her lie down on a massage table.
Subsequently, the singer of “My Heart Will Go On” begins to experience a severe seizure. The doctor summons a colleague from his team to administer Valium, a medicine that addresses the nervous system.
This is when Dion can be heard shaking while face down and moaning in pain.
The “All by Myself” singer begins to scream and whimper as Lobo tries to lift her on her side.
Dion appears wide-eyed and incapable of moving independently in one startling instant.
She can, however, indicate that she is still cognizant at this moment by mildly gripping one of the medical professional’s hands.
Dion then bursts into tears as she carries on having spasms. Lobo advises the singer of “That’s the Way It Is” to try to “calm down,” and she begins to cry even harder.
Dion begins to emerge from her seizure following two nasal spray dosages; nonetheless, the doctor notes that they would have needed to take her to the hospital immediately otherwise.
Dion tells everyone in the room that she feels “so embarrassed” after appearing to be back to her previous self.
“I don’t know how to put it into words, it’s just like, like, losing control over yourself?” She queries.
According to Lobo, the seizure was probably brought on by her brain being “overstimulated” from singing in the studio moments earlier.
“Now, what should I do?” The singer of “Power of Love” then queries. “.. If my passion doesn’t excite me, what makes you think I’m going to go on stage, put the pulse oximeter on me, and turn me on my back?
In response, Lobo says, “I realize it’s scary. It’s challenging. We all know that this is not the end of your adventure. However, this is always that phase of the process.
Performing the R&B and soul song “Who I Am” by Wyn Starks, which has lyrics like “I’ve been closing the door / All my life, held it in but not anymore / Got two feet on the floor / This is it, I’m stronger than ever before,” Dion and Lobo come to a close.
Tuesday saw the emotional debut of the Prime Video documentary, in which Dion restates her desire to return to stage, a statement she has made repeatedly since disclosing her stiff person syndrome diagnosis in December 2022.
The singer of “Because You Loved Me” was forced to postpone her October 2021 Las Vegas residency, cancel her North American tour, and cancel tour dates in Europe due to sickness.
Dion has, however, seemed to be improving recently and may be getting closer to performing once more.
The singer of “A New Day Has Come” made her first appearance in public in a long time at the 2024 Grammy Awards in February. Most recently, she dazzled at the opening of her documentary, wearing a stylish Dior ensemble.
In her document, she sobbed and said, “If I can’t run, I’ll walk.” I’ll crawl if I’m unable to walk. But I’m not going to give up.
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